Event Description
| Meetup Time | Fri, Jun 6, 2025 14:00 |
|---|---|
| Location | Felixstowe (City | Slots) |
| Destination | Felixstowe (City) |
| Main Language | English |
| Communication | https://discord.gg/zcmN8cF |
| Link | https://www.trucksim.fm |
DLCs Requirements
Event Information
TruckSimFM Charity Day 2025!
We will come together to support the first ever
#COL6RELATEDMYOPATHY
Mark your calendar for the 6th of June 2025, and join us in the efforts to support the rare patient community and advance the Global Collagen VI Network. Participation and support are so crucial.
Why are we supporting this cause?
As owners of TruckSimFM Ajax & Pixie have a little boy called Ollie who has this very condition called Ulrich Muscular dystrophy so raising awareness and donation and supporting the charity in the just giving link will hopefully raise vital funds to finding a cure and it takes us one step closer to helping thousands of other col 6 patients around the globe.
What we are doing?
A 24h radio stream plus!!! A convoy 
joining the link for all the information: https://truckersmp.com/events/28189
What are we talking about?
A diagnosis of a rare disease from COL6 deficiency is an extremely difficult experience that puts even the strongest person in the world in a vulnerable condition. Ullrich Muscular Dystrophy, Bethlem Myopathy, Myosclerosis and intermediate forms are caused by mutations in the COL6A1, COL6A2, COL6A3 genes. Inheritance may be autosomal dominant or recessive.
- Please join us on the 6th June 2025 for a full day of entertainment!
- Please if you can donate to the below link Genetic Alliance UK
https://www.justgiving.com/page/ajax-tsfm-4?utm_medium=FR&utm_source=CL
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Attending (21)
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